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I am writing computer software that allows users to learn more about their own DNA and (optionally) allow some of that data to be used for research purposes.

I'm very concerned about a future/theoretical situation in which an insurance company uses that DNA data to disqualify someone on the basis of pre-existing conditions.

Question

  • What privacy regulations exist that would assure users that there is no insurance risk in a collecting information about one's own DNA? (Primarily interested in the USA, but UK and EU would be valuable)

  • Outside of legal regulations, what should users look for when shopping among providers? (for quality, scope of services provided, etc)

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closed as off-topic by canadianer, Remi.b, David, Bryan Krause, AliceD May 23 '17 at 19:51

  • This question does not appear to be about biology within the scope defined in the help center.
If this question can be reworded to fit the rules in the help center, please edit the question.

  • $\begingroup$ There might be different regulations in different parts of the world. Maybe you want to specify a country/area. $\endgroup$ – Arsak May 23 '17 at 17:05
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    $\begingroup$ I'm voting to close this question as off-topic because it is not about biology. $\endgroup$ – canadianer May 23 '17 at 17:06
  • $\begingroup$ That might be a question for Law.SE. I am voting to close for the same reason than canadianer $\endgroup$ – Remi.b May 23 '17 at 17:54
  • $\begingroup$ While the subject is biology based, ethics and laws are not... so I am voting for closure as well. $\endgroup$ – Jeppe Nielsen May 23 '17 at 23:36

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